SO, we went to the doctor again today. she is officially off the meds.. and they did nothing and i had the most grumpy baby i have had yet. ( yes i know i only have one! but she is usually soo happy.) and she has lost half a pound and is now officially under 13 pounds again. which is NOT what i like to see...
soo as of know for all you wondering or care whats next...
I DO NOT KNOW.
the doctor does not know what else to do..
i think that is the WORST thing that i can hear as a mother is that he is literally out of things to do with her, and has no more ideas left. cant send her back to the pediatrician cause she hasnt dropped enough weight. so go back in 2 weeks and see if she gained it back or not.. if not than we will go to the pediatrician and see what they think. the only option left is the surgery, which they are not so keen on doing with such a little baby and they dont like putting babies under anyways.
so today i got to watch the best doctor i have ever been to sit and just stare at her growth chart with nothing on his face.. he really is a amazing doctor. i love him. and am sad that he isnt subbing for my doctor anymore. but he just sat and stared for what felt like an hour but what was really 10 minutes.. we sat in just silence.. he doesnt know what else to do, there are not more drugs to try there is nothing left to try... i gues all we can do here is pray for her..
if this is another one of the "tests" that i have to go through in life im ready to give up.. so the test can stop now.
i have sat and stayed strong every time that i see any doctor.. but today was not one of those days. the look on my doctors face alone made my heart break. he said sorry and that he wished there was more that he could do.. he was really bothered that there was nothing left and that the meds didnt work. he is a great guy.
so thats lillie as of now.. we are literally out of things to try..
so till 2 weeks..
lillie loves you all and so do we, thanks for all of you that take the time to read! and caare! it means alot to both me and trevor.
Locking famjam
Janelle I'm sorry to hear today was so hard! Have you tried taking Lillie to a naturopath? I know its not conventional, but food is the best medicine, and naturopaths are pros when it comes to figuring out the right combo, even for a baby. And do you have her on vitamins? With her being so small, and not keeping much food down, it would be a good idea to keep her immune system bolstered. I feel for you and Lillie. This is not a trial any mother wants to see her daughter face - esspecially when you get to the "what next?" stage of the game. My first had some challenges too, and its hard, but with perseverance it does get better...and then eventually it's just a memory and your sweet baby is happy, healthy and doing great. Let me know if you want some more ideas, support, or anything at all - I'm here for you and I really do care.
ReplyDeletethank you katie.
ReplyDeletewe are looking into that right now. we were just making sure our insurance covered it.